Celebrities: They’re Just Like Us!

When reading through magazines detailing the similarities between famous and everyday people, the reader is often exposed to makeup and airbrush-free celebrities performing mundane activities like taking out the garbage, going for a run, or picking up a smoothie at the local health food store.  In fact, people share much more in common with celebrities than just household chores: health conditions, disorders, dysfunctions and struggles connect noncelebrities with celebrities who previously were just seen as famous, beautiful people in the spotlight.  Advocating for personal health issues and gender identity struggles is a relatively common phenomenon for celebrities, and while there are obvious benefits to attention being brought to these causes, negative consequences may also ensue due to these celebrities shining the spotlight on their conditions.

By bringing much-needed attention to valuable causes, celebrities sharing their stories of stigmatized health conditions can evoke positive responses, such as increased education and awareness, financial support, and lessening the perceived stigma.  Angelina Jolie used her celebrity status to educate the public on breast cancer awareness, prevention, and treatment options.  Jolie discovered in 2013 that she was a carrier of the BRCA1 susceptibility gene, which can be responsible for 45% of inherited breast cancer and more than 80% of inherited breast and ovarian cancer (Castilla et al., 1994), and opted for a preventative double mastectomy. She outlined her decisions in a personal article published in The New York Times, where she explained that she chose to share in order to help other women in the same situation (Jolie, 2013). The ‘Angelina Jolie effect’ is an actual phenomenon, representing the increased awareness of breast cancer treatment and surgical options that took place following the release of Jolie’s story, showing how influential celebrity advocacy can be on the general population (Parry, 2015).

Other celebrities, such as LGBTQ+ activist and transwoman Laverne Cox, have become role models for young people facing similar situations and through advocating their cause, can affect social change.  Cox herself was the first transgender person to ever be nominated for an Emmy award and was the first transgender person to appear on the cover of TIME magazine (Gjorgievska & Rothman 2014).  By using the media hype to her advantage, Cox is inspiring young LGBTQ+ individuals.  Laverne Cox has lessened the stigma on trans people by advocating her cause and she helped to empower other individuals with gender identity struggles.

Padma Lakshmi, television personality, model, and author has used her personal illness to inspire donations and financial support for endometriosis research.  Endometriosis is a reproductive disorder, affecting approximately 176 million women and girls worldwide (Endofound.org, 2015), where endometrial tissue implants in abnormal locations. In 2009, in partnership with her doctor Dr. Tamer Seckin, Lakshmi founded the Endometriosis Foundation of America, or Endofound for short. Padma Lakshmi admitted that she had never heard of the disease until her diagnosis at the age of 36, and felt that the lack of available information was problematic (Endofound.org, 2015). The organization holds a yearly medical conference and numerous campaigns to fund research for the painful disease (Endofound.org, 2015).  Padma Lakshmi’s openness about her seemingly personal reproductive disorder has helped to open the floor for research on, and discussion about, treatment options for the millions of women worldwide silently suffering from endometriosis.

While sharing their stories and advocating for change can lead to progress in research, education and treatments, there are also downsides to having stars talk about their personal battles with health.  Celebrities have access to elite and expensive care, or radical and unconventional treatments that may not represent what is available to the general public.  Caitlin Jenner’s transition represents a transgender experience that is “far from the norm.”  While her impact on the transgender community may have been a positive step towards awareness and equality through the extensive media coverage, Jenner had access to the best doctors, treatments and stylists, which is far from the case for most transgender individuals (Grinberg 2015).  Jenner’s coming out was a positive step for the transgender community—working towards lessening the stigma of gender identity struggle—but it nevertheless displays an unrealistic expectation of a gender transition.

Similarly, Lena Dunham’s (creator, writer, and star of the HBO series Girls [2012-2017]) experience with endometriosis, ultimately leading to the removal of her uterus is a radical treatment option that would not be recommended to most women inflicted with endometriosis (Dunham, 2018).  By sharing their stories, people may be lead to think that the particular treatment is the only option, like Angelina Jolie’s double mastectomy or Lena Dunham’s hysterectomy.  These therapies are not conventional, and advocating for uncommon treatments may be risky.  While a treatment option may be successful for one person, it may not be universally effective, showing how important it is to seek individualized attention, rather than information based on stories in the media.

It is important to recognize that while a celebrity with a similar experience may give valuable advice and education on the topic, ultimately, stars are not physicians.  Opening the floor to discuss their health stories has many great benefits to improve awareness and decrease stigma on all sorts of issues—even sexuality-related health problems; however, celebrities should not be treated as experts.  People need to be proactive with regards to their own health, and use the testimonies of celebrities as inspiration to advocate for themselves.

Amanda Szpindel, BAH, Queen’s University

References

Gjorgievska, Aleksandra, and Lily Rothman. “Laverne Cox Becomes First Transgender Person Nominated for an Emmy.” Time, Time, 10 July 2014, time.com/2973497/laverne-cox-emmy/.

Grinberg, Emanuella. “What it's like to be transgender and not Caitlyn Jenner.” CNN, Cable News Network, 15 July 2015, www.cnn.com/2015/06/03/living/caitlyn-jenner-transgender-reaction-feat/index.html.

Jolie, Angelina. “Opinion | My Medical Choice by Angelina Jolie.” The New York Times, The New York Times, 14 May 2013, www.nytimes.com/2013/05/14/opinion/my-medical-choice.html.

“Padma Lakshmi's Personal Cause: The Endometriosis Foundation of America - Women’s Health.” Endometriosis : Causes - Symptoms - Diagnosis - and Treatment, 12 Mar. 2015, www.endofound.org/padma-lakshmi-s-personal-cause-the-endometriosis-foundation-of-america.

Parry, Lizzie. “'Angelina Jolie effect' IS real: Actress' double mastectomy and reconstruction has raised awareness of cancer treatment.” Daily Mail Online, Associated Newspapers, 28 Sept. 2015, www.dailymail.co.uk/health/article-3252402/Angelina-Jolie-effect-real-Actress-double-mastectomy-reconstruction-raised-awareness-cancer-treatment.html.

 

 

Testicular Cancer & Sex - What You Should Know

Testicular cancer is rare, but it is the most common cancer in young men. Fortunately, it is almost always treatable - about 97% of testicular cancer patients will survive if it’s treated rapidly. In order to discuss how testicular cancer affects the patient’s sex life, it’s important to first discuss what it is, how to detect it, and how to treat it.

Symptoms

There are no known prevention methods against testicular cancer, so it’s crucial for men to know which symptoms they should look out for in order to start treatment as soon as possible. Some symptoms of testicular cancer include lumps in the testicles, enlarged testicles, aches in the lower abdomen or groin, and sudden swelling around the testicles. If you notice any of the other symptoms, be sure to check in with a doctor as soon as possible.

Self-Exams

Similarly to checking for breast lumps, men can and should perform self-exams for testicular bumps at least once a month. The self-exams are quick, so men can easily find time to complete them after showers or while getting ready in the morning. Here are the suggested steps to take:

  1. Stand in front of a mirror and check for any swelling.
  2. Relax, support your testicles with your hands, and roll the testicle between your thumb and fingers checking for bumps. You’ll likely feel a cord-like structure at the top of and behind your testicles which is completely normal.
  3. Look out for any bumps that feel like hard rubber. They can be as small as a grain of rice.
  4. Check for tenderness.
  5. If you find any swelling, lumps, or tenderness, consult a doctor.

Treatment

As stated previously, testicular cancer is, luckily, quite treatable. Depending on what stage the patient is in, there are different options for treatment. These options include surgery, chemotherapy, radiation therapy, and surveillance. Typically, removal of the testicle with the tumor is the first option. Patients with stage 1 are often just monitored after their surgery. Those with stage 2 are typically treated with radiation therapy or chemotherapy. Lastly, those with stage 3 suffer from the cancer spreading to other parts of the body and undergo combination chemotherapy.

Testicular Cancer & Sex

With cancer located in such a private and sensitive location, it’s completely understandable to be worried or curious about how testicular cancer may affect one’s sex life. These sections will elaborate on how testicular cancer impacts patients’ fertility, erections, and sex drive. For some quick facts on the subject, see the infographic below by the men’s wellness brand, hims.

Fertility

With the removal of the testicle(s) as the most common treatment, one of the first questions many men have is whether they’ll be able to father children after the surgery. Fortunately, with this treatment option, fertility will almost always return to normal once the cancer has been treated if only one testicle was removed. If both testicles are affected and, therefore, must be removed, the patient will be infertile after surgery. However, before undergoing surgery for testicular cancer, men can preserve their sperm for use in the future if he would like to have children.

As for the effects of chemotherapy, men will likely experience temporary infertility while undergoing treatment. This should return back to normal less than a year after treatment. However, if there is a high dose of chemotherapy being used, it’s possible that he will suffer from infertility permanently afterward. In this case, it’s a good idea to save and preserve the sperm as well.

Lastly, those who undergo radiation therapy should return back to normal a few months after treatment. It should be noted, however, that doctors advise not to attempt to father a child until at least a year after your final radiation treatment as it’s possible that the radiation can affect the sperm and lead to health issues for the child.

Erections

Another common worry of men with testicular cancer is whether they’ll struggle with getting an erection. Men who have one testicle removed should not have problems getting erections since their healthy testicle should be able to produce enough testosterone. However, if both testicles are removed, men can undergo testosterone replacement therapy in order to continue getting erections and improve their sex drive. With radiation, it is possible that it can impact nerves and arteries, therefore making it more difficult to get and maintain an erection. Lastly, chemotherapy should not have an effect on a man’s ability to get an erection. Fortunately, there are erectile dysfunction solutions men can look into to help them get and maintain erections.

Sex Drive

One more concern men have is whether their sex drive will be affected by testicular cancer or its treatments. If one testicle had to be removed, there typically is no effect on sex drive. As stated previously, if both testicles are removed, testosterone replacement therapy can be done to improve this. During treatment, it is completely normal to experience a loss of sex drive, but, it has been found that sexual satisfaction is still relatively high despite any issues that may occur.

Although there are some potential effects testicular cancer and its treatments may have on men, it’s important to remember that there are a variety of methods to overcome these changes. All men should routinely check for any irregularities associated with testicular cancer and consult their doctor right away if an issue is found.

References

Henkel, J. (1996). Testicular cancer. FDA Consumer, 30(1), 24.

Steinmehl, E. (2005). what he needs: awareness. Health (Time Inc. Health), 19(2), 64.

Developed by, R. (2013). Testicular Self-Exam. CRS - Adult Health Advisor, 1.

National Cancer Institute. (2018). Treatment Option Overview. https://www.cancer.gov/types/testicular/patient/testicular-treatment-pdq

Cancer Research UK. (2017). Fertility. http://www.cancerresearchuk.org/about-cancer/testicular-cancer/coping/fertility